Wednesday, 3 December 2014

Conference notes- a work in progress

I gave a talk about my experiences as a patient at a conference last week, and promised to post my notes here. This is just a quick post to say that I'm not sure when I'll get around to doing it, I'm still recovering from the conference and a virus that we picked up. I'll probably be able to get something up in the next week or two.
Thanks to everyone who attended my talk and who gave such generous applause. If you'd like to send me some feedback on what was useful or what else you'd like to learn from my presentation, please feel free to contact me using the contact form on the side of this blog.

If you're interested in reading the detailed blog of my experiences as a cancer patient, feel free to go to

It was started as a way to keep family and friends informed of my progress through treatment for early breast cancer. I had no idea I was going to develop multifocal grade IV brain tumours in September last year. In hindsight, and reading the blog, I can see that the neurological symptoms started in August 2013, but I'd been through so much by then, and had so many different symptoms, I thought it was just related to the breast cancer treatment.

 It's great to be alive and improving every day,  15 months later, though I'm told the fatigue and long muscle weakness could last for a few years. Be warned, the neuroboob blog is very experiential and has lots of self-disclosure. If you'd prefer to wait for my notes from the conference presentation, I'll endeavour to get them up before Christmas.
Best wishes

No comments:

Post a Comment